We have a new group on Facebook for parents of children with disabilities to ask questions, share practical information, discuss topics and support each other.
Swing over and join us at Parent Voices. Louise
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I just read this exquisite piece by Kari Wagner-Peck, above with son Thorin, 8. Thorin attended Grade 1 at public school last year in Portla... -
Author, teacher and editor Kate Hopper has dedicated most of her creative energy to one thing: motherhood. The Minnesota mother has written ... -
There are a few spots left at the Bloorview Research Institute Symposium here at Holland Bloorview on Nov. 13. The keynote is Shelby Nurse, ...
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A sewing project is changing the lives of two dozen Kenyan mothers of children with disabilities. Malaika Mums , run by the humanitarian gro... -
Nine ways you can help a special-needs parent Michael Kutcher, Ashton's twin brother, fights for cerebral palsy research The litigious m... -
By Marcy White I hate Pelizaeus-Merzbacher disease (PMD). On March 21, 2003, I was told that PMD was the cause of my son Jacob’s many medi... -
It was a treat when Ben came home Tuesday night with a course catalogue for choosing his courses for Grade 10. He has to take math and scien... -
I was surprised to see a man who was allegedly abused described as "retarded" on the front page of your newspaper and in the first... -
I left our talk with author Donna Thomson on a high last night. She filled my head with ideas for creating a life my son values, new econom... -
A number of stories crossed my desk recently that made me think about how our culture assigns value to people and how this disadvantages fam...
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- down syndrome; rare; judith thompson; madeleine greey
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- everyday blessings
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- intractable seizures
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- jean vanier; huffington post
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- Jennifer Johannesen
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- Joel Yanofsky
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- journal of medical ethics; Alberto Giubilini; Francesca Minerva; infanticide; after birth abortion; treacher collins; down syndrome
- judge rotenberg center; electric shocks; petition; intellectual disability
- Judith Scott; Joyce Scott; Pia Pearce; Kevin Pearce; fibre sculpture; Brooklyn Museum; Down syndrome; deaf; disability; parenting
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- lift animation; henrietta bulkowski; rachel johnson
- lime connect; rich donovan; cerebral palsy
- listening
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- mice
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- Music
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- narrative medicine
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- narrative medicine; nursing; children's rehab;
- narrative medicine; rita charon; international network of narrative medicine; david small; stitches;
- National Health Service
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- new england journal of medicine
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- New York City
- new york times
- new york times; danny hakim; lawmaker to file suit charging abuse of his disabled son; retarded
- new york times; intellectual disability; mental retardation
- new york times; word usage; retarded; spread the word to end the word; ricky weisenberg
- NHS
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- No Greatness without Goodness; Walgreen; Walgreen's; Randy Lewis; disabilities; disability hiring; disabled staff; inclusion; david onley; autism
- no one is here but all of us
- no ordinary boy
- no ordinary boy; jennifer johannesen; owen turney; achievement; difference; parenting kids with disability
- noah's dad; national down syndrome society; new york city buddy walk
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- ontario disability support program; silken laumann; ontario ombudsman; adults with developmental disabilities; amanda telford
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- Ontario Telemedicine Network
- organ transplant
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- Parenting; disability; abuse; abuse rates; World Health Organisation; WHO; the Lancet
- parenting; disability; special needs; stress; anxiety; depression; mental health
- parentscanada; down syndrome
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- Pelizaeus-Merzbacher disease
- Pelizaeus-Merzbacher disease; PMD; degenerative; ventilator; siblings; fatal illness; injustice; Parent-talk;
- perinatal quality collaborative of north carolina
- philip seymour hoffman; simon critchley; joel yanofsky; ohio family health survey; stress; parenting kids with disability; financial and psychological stress
- photos
- photoshop
- physical activity
- physical aggression
- physical disability
- physical health
- physician
- Pia Pearce
- picture day
- planet of snail
- plastic surgery; ethics; decision making
- poet in residence
- poetic medicine; john fox; lisa levinson; blythedale children's hospital; the institute for poetic medicine
- polite
- polite behavior
- port wine stain
- positive exposure
- positive exposure; rick guidotti; chromosome 18
- positive psychology
- posttraumatic growth; Parenttalk; advocacy; disability; parenting; chronic health conditions; Journal of Palliative Medicine
- prader-willi syndrome; duchenne muscular dystrophy; odds; lottery; percentiles
- prenatal testing
- president obama
- preventable death
- Pro Bono Law Ontario
- processors
- project revision
- Project Search
- protecting our tomorrows
- Provincial Advocate for Children and Youth
- provincial advocate for children and youth; cerebral palsy; non-verbal; advocacy; siblings
- Psychological Medicine
- public school
- quality of life
- quality of life; severe disabilities
- questions
- rachel adams; raising henry; a memoir of motherhood
- rachel johnson; lift animation; henrietta bulkowski; the toll collector; intellectual disability; physical disability
- racism
- RARE
- rare disorders
- Rare;Down syndrome;Judith Thompson;play ;Fringe Festival 2012
- recreation
- reelabilities
- refusing
- rehab
- rehab; normal; fixing; acceptance; university of toronto; bloorview research institute; international classification of functioning
- research
- Research-hits
- research; health care costs; complex care; termination; withdrawal of care
- research; neurotribes; genetics; intellectual disability; autism; steve silberman
- residential
- resilience
- resistance
- resistant
- respect
- restaurants
- retard
- retard; ann coulter; mitt romney; intellectual disability
- retarded
- rewards
- rich donovan
- rich donovan; fifth quadrant analytics; return on disability rating; LIME connect; Walgreens; disability market; new york subway system
- rick guidotti
- Rick Mercer; Variety Village; accessible; sports; fitness; membership; savings
- Riverside
- Robert Ethan Saylor; Down syndrome; autism; neurodiversity; stereotypes
- robert ethan saylor; motherlode; andrew solomon; far from the tree;
- Role-model
- rollaball
- Ronna Bloom
- ronna bloom; mount sinai hospital; compassion fatigue; university of toronto; health
- Rosa Monckton
- roundup
- Routines
- Royal Dutch Medical Association
- Runway of Dreams
- Ryerson University
- safety
- sandi cox
- Sara Ryan
- Sarah Harmer
- school
- school; advocacy; behaviour
- science
- scope
- Scott Lentine; arc of massachusetts; autism;
- Searching for Solid Footing
- seatrac; technology; accessibility
- seattle children's hospital
- segregation
- seizures
- seizures; intractable seizures; siblings; parenting kids with disability; brain injury; children's rehab
- Select Committee on Developmental Services
- selective abortion; prenatal testing
- self worth; intellectual disability; l'arche; ellen seidman
- self-enhancement bias
- self-reliance
- sensitive child
- Sequenom
- sexual assault
- sharing
- sharing diagnosis
- Sheila Jarvis
- shelby nurse
- sheltered workshops
- shelters
- sibling rivalry
- Sibling-talk
- siblings
- siblings; melanie and tommy have two pet rats; parenting kids with disability
- siblings; parenting kids with disabilities; softening; Kelly O'Brien; brain damage; new york times
- siblings; parenting kids with disability
- siblings; parenting kids with disability; Down syndrome
- siblings; parenting kids with disability; guardianship
- siblings; parenting kids with disability; mental health
- siblings; siblings with disabilities; research; Sibling-Talk
- SickKids
- Silken Laumann
- Silken Laumann; olympian rower; autism; stepparenting;
- skeletal dysplasia; respiratory infection; intubation; medically fragile; quarantine; colds; intensive care unit; Parent-talk
- sketching
- Slade House
- sleep disorder; Know the Night; Maria Mutch; Down syndrome; autism; jazz; explorers; Antarctic; Parent-talk
- slow
- slow code
- snaps
- snow
- snowboarding
- social
- social isolation
- social media
- social work; adulthood; independence; disability; adult services; pediatric services; Ontario Disability Support Program; Developmental Services Ontario; Holland Bloorview; Staff-stories;
- sociology
- softening
- something for the pain; paul austin; down syndrome; emergency room
- something for the pain; stereotypes; people first language
- Special in Uniform; Israeli Defence Forces; disability; special needs; training; army; autism; Down syndrome; Yossi Kahana; Clinical-care; Israel
- special needs
- special needs; Anjet van Dijken
- special needs; holidays; stress; christmas; fragile x
- special needs; single parents; parenting kids with disability; respite
- Special Olympics
- special sparkle
- specialized school
- speech
- speech therapy
- speech therapy; apraxia; oral motor problems; non verbal; hearing loss
- speech; augmentative communication
- speech; augmentative communication; AAC; Pierre Robin sequence; cleft palate; apraxia
- spina bifida
- spinal cord injury; acquired disability; carolyn pioro; special needs; disability; parenting; paralysis
- Spiral Garden
- Spread the word to end the word
- spread the word; r-word
- staff stories
- Staff-stories
- stand clear of the closing doors; autism; trailer;
- starbucks
- stares
- staying calm
- Stephen Dubner
- stephen unwin; a day in the life of joe egg; epilepsy; intellectual disability
- stereotypes; down syndrome; advertising; media
- stereotypes; parenting kids with disability; psychology today; dr. fredric neuman; with a little moxie; meriah nichols; autism; transplant; abuse
- Steven Levitt
- stigma
- stories
- stories; narrative medicine; clinicians; family centred care
- stress
- stress; parenting kids with disability
- stroke
- stronger
- Stumbling on Happiness
- Sturge Weber syndrome
- success
- sue austin; freewheeling; underwater wheelchair; stereotypes; scuba diving; cultural olympiad; olympics; paralympics
- sue austin; underwater wheelchair
- suicide
- Summer
- Susan Senator; autism; advocacy; autistic self-advocacy network; Parent-talk; siblings; limited speech; isolation; exclusion; inclusion
- swearing
- synthetic happiness
- Tali Berman
- tantrums
- teaching
- technology
- ted talk
- teenagers
- tekeal riley
- the black swan; random; unpredictable; blame game; nassim taleb
- the boy in the moon
- The Boy Who Can
- The Brothers and Sisters Book
- The Crash Reel
- The Fall: A Father's Memoir in 424 Steps
- The Harvard Crimson
- the Hebrew University; dr. Ruth Kannai; prenatal testing; termination; Gaucher's disease; narrative medicine
- the memory clinic; tiffany chow; doctor patient relationship; penguin
- the moon
- The National
- the new york times; retarded; international business times; slur
- the pearls project; from stigma to super model; differences
- the revised fundamentals of caregiving; the brief wondrous life of oscar wao; this is how you lose her; the sun
- the shape of the eye; intellectual disability
- the stars
- the strange language of doctors
- The way he looks
- therapy
- therapy; parenting kids with disability
- therapy; values; balance
- Think Like A Freak
- think-throughs
- three days to see
- three days to see; michelle smith; perkins school for the blind; asperger's
- three to be; neurological disorders
- tibetan prayer flags
- Tim Cook
- Tim Horton's
- today's parent; anchel krishna; sign language; speech; communication
- Tomasz Śliwiński
- Toronto
- tracheotomy
- transition
- triathlon; Family
- Triluma Living Collaborative
- Trinity College Dublin
- Trisomy 13
- United Cerebral Palsy
- university
- university health network
- University of Alabama
- university of bristol
- University of California
- university of guelph
- university of toronto
- University of Toronto;
- unschooling
- Upsee
- use your words
- Vancouver 2010 Olympics
- Vanderbilt University
- variety village
- ventilator
- ventilators
- video games; cerebral palsy; therapy
- videoconferencing
- Videos
- violence
- voice device
- wait
- Walgreen's
- walker
- walking
- walking harness
- ward family summer student program; bloorview research institute; healthy body scorecard
- we are fine enough; marc schlossman; autism
- weather
- weight management
- wheelchair
- white-blonde hair
- Williams syndrome
- willowbrook
- winter
- withdrawal of artificial nutrition and hydration in newborns; jonathan hellmann
- withdrawal of care
- withdrawal of fluids in newborns
- women
- women and disability
- wonder baby; perkins school for the blind; vision impairment; multiple disabilities
- woodbine house; sex education; boys guide to growing up
- word use
- world health organization
- worry; emotions; parenting kids with disability
- xavier le pichon; fragility; empathy; plate tectonics;
- xavier pichon
- yelling
- yoga
- york university
- york university; Nazilla Khanlou; parenting kids with disability; service barriers; language barriers; cultural barriers
- young carers
- youth
- Youth Drop In
- Yummy Mummy Club
- zippers
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- Fit for a queen
- Med students put themselves in the picture
- How Teddy 'opened' his family
- When brain differences aren't deficits
- Making sense of autism risks
- Snap
- Selective abortion: A choice or a social expectation?
- 'I love the boy to pieces and I'm grief-stricken'
- 'The little things? They aren't little'
- Pink day
- Join us on Parent Voices!
- How one boy's life changed mine
- Bad Animals: Joel Yanofsky on World Autism Day
- Who will speak for Ethan Saylor?
- Where do families turn for services?
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