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I have a wonderful Ryerson journalism student working on BLOOM this summer. Her name is Megan Jones. Here's a piece she did on the benef... -
Yesterday my blogging friend Meriah Nichols had a piece published in Mamalode called Be not afraid . It’s a candid piece about looking out ... -
At the Certain Proof screening last week, many said we had to be more vocal in telling our children's stories, and in making those stor... -
By Lori Beesley Holland Bloorview family leader At this time of the year, other children are putting pencils and crayons to paper, writing t... -
One child, 10 conditions, no diagnosis By Julie Drury Our daughter Kate (above) had 10 medical conditions but no diagnosis. Episodes of repe... -
The upside of going downhill By Ijeoma Ross We happened upon skiing almost by accident. Four years ago we had a bad case of cabin fever. C... -
Rick Guidotti spent years surrounded by conventional beauty ideals. He worked as a fashion photographer, shooting all over the world for com... -
Crystal Chin, 23, came to Canada from Taiwan at age 10 and can’t remember a time when therapy wasn’t a constant in her childhood. Crystal ha... -
You have an eight-year-old daughter with severe disabilities. You and your partner have just brought her to the operating room for major sur... -
Sometimes I wish Ben had more age-typical interests. I wonder whether I should be 'pushing' him into common teen pursuits and 'd...
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- donna thomson; the four walls of my freedom; housing; severe disability
- Doug Ford; autism; mental health; group home; narrative medicine; paul browde
- Down syndrome
- Down syndrome; inclusion; parenting kids with disability
- down syndrome; parenting kids with disability; stereotypes; stigma; facial features
- Down syndrome; prenatal diagnosis; community; parenting kids with disability; Parent-talk; stigma; stereotypes
- down syndrome; rare; judith thompson; madeleine greey
- dr. brian goldman
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- Dr. James Rimmer
- dr. michael gardam
- dr. michael gardam; infection prevention; hospital infection; handwashing
- Dream Serenade
- drowning
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- dyslexia
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- emotion
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- emotions
- employment
- employment; developmental disabilities; a whole lott more
- employment; teens with disabilities; physical disability; research
- empty
- empty nest; parenting; disability; special needs; child care; babysitting; independence; adulthood; Parent-talk
- encephalitis
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- everyday blessings
- excessive caregiving
- exclusion
- exclusion; disability; social; special needs; parenting; belonging; friends; Parent-talk
- explaining disability; parenting; disability; special needs; Parent-talk; genetic; genetic deletion; Langer Giedion Syndrome
- facebook; parent voices at holland bloorview
- families
- family centred care
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- Family Life
- family-centred care
- family-centred care; cultural sensitivity; finances; social structure
- far from the tree
- far from the tree; andrew solomon; new york times; prodigies
- fast
- fibromyalgia
- Fifth Quadrant Analytics
- fifth quadrant analytics; disability as economic market
- Firefly
- Fit; play and learn; Holland Bloorview
- foothpath
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- friends; exclusion; parenting kids with disability; isolation; developmental disability; autism; Down syndrome; intellectual disability; Ivey Centre for Health Innovation; Sandbox Project
- friendship; inclusion; parenting kids with disability
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- friendships
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- Fringe Festival
- full
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- Gabrielle Marion-Rivard
- gabrielle; louise archambault;
- gardening
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- getting up
- Ghana
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- grief; doctors; health workers; children's rehab
- Groningen Protocol
- group home
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- growth hormone; ethics
- HAI
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- handiworld; cerebral palsy; autism; down syndrome
- Hanzhen Yap
- happiness
- hardwiring happiness; rick Hansen; meditation; perspective; parenting kids with disability
- Hayden Desser
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- health
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- healthy baby; birth defects; causes of child disability; blaming mothers; march of dimes; new york times; healthy babies are worth the wait; three to b: parent advocacy link
- healthy mom
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- Helen Hoens
- hematology oncology unit
- high school
- HIV positive; AIDS; narrative medicine; international network of narrative medicine; Dr. Paul Browde
- Holland Bloorview
- Holland Bloorview Kids Rehabilitation Hospital
- Holland Bloorview Kids Rehabilitation Hospital Foundation
- Holocaust
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- homeless
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- homeschooling; Down syndrome; disability; parenting; wheelchairs; Julia Hanigsberg; Martin Pistorius; brittle bone disease; Legoland; 3D printing; surgery; mental illness; Facebook
- homework
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- How To Raise Monarch Butterflies
- how's your news; 2012 US election
- hypopigmentation
- I Have Something To Say
- ian brown
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- immigration
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- in a world; lake bell; the reason i jump; my silly feet
- inaccessibility
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- inclusion; AAC; gail teachman
- inclusion; autism; parenting kids with disability
- inclusion; friendship; friends; belonging; exclusion; disability; Parent-talk; drum circle; Cornelia de Lange syndrome;
- inclusion; parenting kids with disability; down syndrome
- inclusion' Down syndrome
- independence
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- intellectual disabilities
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- Intellectual Disability Supplement to The Irish Longitudinal Study on Aging
- intellectual disability; autism; parenting kids with disability; adulthood
- intellectual disability; avoidable death; premature death; the night shift; brian goldman; pauline heslop
- intellectual disability; housing; group home; parenting kids with disability
- intellectual disability; intelligence; virtues; rachel adams
- intellectual disability; stigma; discrimination; employment; cleaning bathrooms
- intellectual disability; the campaign against the R word;
- interactive waiting room
- International classification of functioning
- International Day of Acceptance; 3E Love Network; disability; Annie Hopkins; Steve Hopkins; Wheelchair
- international day of persons with disabilities
- international day of persons with disabilities; provincial advocate for children and youth; transplants; intellectual disability
- intractable seizures
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- Invisible Mom
- IQ
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- Jason Nolan
- jean vanier; huffington post
- jean vanier; l'arche; intellectual disability
- Jennifer Johannesen
- jezebel
- jobs training
- Joel Yanofsky
- john franklin stevens
- journal of medical ethics; Alberto Giubilini; Francesca Minerva; infanticide; after birth abortion; treacher collins; down syndrome
- judge rotenberg center; electric shocks; petition; intellectual disability
- Judith Scott; Joyce Scott; Pia Pearce; Kevin Pearce; fibre sculpture; Brooklyn Museum; Down syndrome; deaf; disability; parenting
- Judith Thompson
- Julia Hanigsberg
- kabat-zinn
- kate hopper
- kelly clarkson
- kelly o'brien
- kenya
- kenya; comfort the children international; whole foods market; malaika mums; malaika kids
- Kenzaburo Oe
- ketogenic diet
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- Kids Who Can; camp; easter seals
- kids who can; camp; parenting kids with disability; easter seals; photosensitive
- kids with disability
- Kristen Slesar
- L'Arche
- l'arche; intellectual disability; jean vanier; trosly france
- l'arche; intellectual disability; trosly; jean vanier
- Langer Giedion Syndrome
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- Les Muses
- letting go
- life skills
- life-threatening illness
- lift animation; henrietta bulkowski; rachel johnson
- lime connect; rich donovan; cerebral palsy
- listening
- listening and cooperation
- Liz Powers
- lop ear
- Los Angeles Unified School District
- Louise Archambault; Gabrielle
- love that max
- Love Your Brain
- loving kindness; the memory clinic; dr tiffany chow; baycrest; the four walls of my freedom
- low vision
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- Lululemon
- madeleine greey
- mahdieh dastjerdi
- making new rules
- Malaysia
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- medical research
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- meningitis
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- mental retardation; intellectual disability; new york times; retarded; american psychiatric association; dsm
- mice
- Michael Berube
- micro-deletion
- micro-duplication
- microarray testing
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- Mindy Scheier
- mitochondrial disease
- mitochondrial disease; children's hospital of eastern ontario
- monarch butterflies
- moron
- mother's speak up; immigrant mothers
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- mothers of children with autism
- Mount Sinai
- movement
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- muscular dystrophy
- Music
- music practice
- Music Without Barriers
- my autism and me
- narrative medicine
- narrative medicine; american journal of medical genetics; dr malgorzata nowaczyk
- narrative medicine; arthur frank; international network of narrative medicine; university of calgary; stories
- narrative medicine; nursing; children's rehab
- narrative medicine; nursing; children's rehab;
- narrative medicine; rita charon; international network of narrative medicine; david small; stitches;
- National Health Service
- nature magazine
- nazilla khanlou
- negative capability
- neurodiversity; steve silberman; wired; andrew solomon; george estreich
- new england journal of medicine
- New Jersey State Supreme Court Justice
- New York Adaptive Design Association
- New York City
- new york times
- new york times; danny hakim; lawmaker to file suit charging abuse of his disabled son; retarded
- new york times; intellectual disability; mental retardation
- new york times; word usage; retarded; spread the word to end the word; ricky weisenberg
- NHS
- nike; mark parker; nikeletter; matthew walzer; easy-to-fasten shoe; cerebral palsy
- No Greatness without Goodness; Walgreen; Walgreen's; Randy Lewis; disabilities; disability hiring; disabled staff; inclusion; david onley; autism
- no one is here but all of us
- no ordinary boy
- no ordinary boy; jennifer johannesen; owen turney; achievement; difference; parenting kids with disability
- noah's dad; national down syndrome society; new york city buddy walk
- non-invasive
- non-verbal
- Norman and Marion Robertson Charitable Foundation
- Northern Ireland
- nova's ark
- nova's ark; mary-ann nova; camps; parenting kids with disability
- Novartis
- obesity
- occupational therapy; parenting kids with disability; stories; BLOOM speaker nights
- Olympics Paralympics merger
- one question friday
- online connections
- ontario disability support program; silken laumann; ontario ombudsman; adults with developmental disabilities; amanda telford
- Ontario Ministry of Community and Social Services
- Ontario Ministry of Community Services
- Ontario Ministry of Education
- Ontario Ministry of Health and Long-Term Care
- Ontario Telemedicine Network
- organ transplant
- Other Press
- Our Curse
- outreach360
- overweight
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- pakistan earthquake; paraplegia; spinal cord injury; university of alberta
- paranorman; travis knight; globe and mail
- parent mentor
- parent-child conflict
- Parent-talk
- Parent-talk; disability; special needs
- Parent-talk; disability; special needs; parenting
- parenting
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- parenting kids with disability; intellectual disability; mr men books
- parenting kids with disability; maine adaptive sports and recreation; canadian association of disabled skiing
- parenting kids with disability; rehab; brazil
- parenting kids with disability; retard; autism; disability hate crime
- parenting kids with disability; stress reduction; stress
- parenting with a disability
- parenting; cerebral palsy; disability; tips; transition; adulthood; independence; Parent-talk;
- Parenting; disability; abuse; abuse rates; World Health Organisation; WHO; the Lancet
- parenting; disability; special needs; stress; anxiety; depression; mental health
- parentscanada; down syndrome
- patience
- patient stories
- patient story
- pediatrician
- peer support
- Pelizaeus-Merzbacher disease
- Pelizaeus-Merzbacher disease; PMD; degenerative; ventilator; siblings; fatal illness; injustice; Parent-talk;
- perinatal quality collaborative of north carolina
- philip seymour hoffman; simon critchley; joel yanofsky; ohio family health survey; stress; parenting kids with disability; financial and psychological stress
- photos
- photoshop
- physical activity
- physical aggression
- physical disability
- physical health
- physician
- Pia Pearce
- picture day
- planet of snail
- plastic surgery; ethics; decision making
- poet in residence
- poetic medicine; john fox; lisa levinson; blythedale children's hospital; the institute for poetic medicine
- polite
- polite behavior
- port wine stain
- positive exposure
- positive exposure; rick guidotti; chromosome 18
- positive psychology
- posttraumatic growth; Parenttalk; advocacy; disability; parenting; chronic health conditions; Journal of Palliative Medicine
- prader-willi syndrome; duchenne muscular dystrophy; odds; lottery; percentiles
- prenatal testing
- president obama
- preventable death
- Pro Bono Law Ontario
- processors
- project revision
- Project Search
- protecting our tomorrows
- Provincial Advocate for Children and Youth
- provincial advocate for children and youth; cerebral palsy; non-verbal; advocacy; siblings
- Psychological Medicine
- public school
- quality of life
- quality of life; severe disabilities
- questions
- rachel adams; raising henry; a memoir of motherhood
- rachel johnson; lift animation; henrietta bulkowski; the toll collector; intellectual disability; physical disability
- racism
- RARE
- rare disorders
- Rare;Down syndrome;Judith Thompson;play ;Fringe Festival 2012
- recreation
- reelabilities
- refusing
- rehab
- rehab; normal; fixing; acceptance; university of toronto; bloorview research institute; international classification of functioning
- research
- Research-hits
- research; health care costs; complex care; termination; withdrawal of care
- research; neurotribes; genetics; intellectual disability; autism; steve silberman
- residential
- resilience
- resistance
- resistant
- respect
- restaurants
- retard
- retard; ann coulter; mitt romney; intellectual disability
- retarded
- rewards
- rich donovan
- rich donovan; fifth quadrant analytics; return on disability rating; LIME connect; Walgreens; disability market; new york subway system
- rick guidotti
- Rick Mercer; Variety Village; accessible; sports; fitness; membership; savings
- Riverside
- Robert Ethan Saylor; Down syndrome; autism; neurodiversity; stereotypes
- robert ethan saylor; motherlode; andrew solomon; far from the tree;
- Role-model
- rollaball
- Ronna Bloom
- ronna bloom; mount sinai hospital; compassion fatigue; university of toronto; health
- Rosa Monckton
- roundup
- Routines
- Royal Dutch Medical Association
- Runway of Dreams
- Ryerson University
- safety
- sandi cox
- Sara Ryan
- Sarah Harmer
- school
- school; advocacy; behaviour
- science
- scope
- Scott Lentine; arc of massachusetts; autism;
- Searching for Solid Footing
- seatrac; technology; accessibility
- seattle children's hospital
- segregation
- seizures
- seizures; intractable seizures; siblings; parenting kids with disability; brain injury; children's rehab
- Select Committee on Developmental Services
- selective abortion; prenatal testing
- self worth; intellectual disability; l'arche; ellen seidman
- self-enhancement bias
- self-reliance
- sensitive child
- Sequenom
- sexual assault
- sharing
- sharing diagnosis
- Sheila Jarvis
- shelby nurse
- sheltered workshops
- shelters
- sibling rivalry
- Sibling-talk
- siblings
- siblings; melanie and tommy have two pet rats; parenting kids with disability
- siblings; parenting kids with disabilities; softening; Kelly O'Brien; brain damage; new york times
- siblings; parenting kids with disability
- siblings; parenting kids with disability; Down syndrome
- siblings; parenting kids with disability; guardianship
- siblings; parenting kids with disability; mental health
- siblings; siblings with disabilities; research; Sibling-Talk
- SickKids
- Silken Laumann
- Silken Laumann; olympian rower; autism; stepparenting;
- skeletal dysplasia; respiratory infection; intubation; medically fragile; quarantine; colds; intensive care unit; Parent-talk
- sketching
- Slade House
- sleep disorder; Know the Night; Maria Mutch; Down syndrome; autism; jazz; explorers; Antarctic; Parent-talk
- slow
- slow code
- snaps
- snow
- snowboarding
- social
- social isolation
- social media
- social work; adulthood; independence; disability; adult services; pediatric services; Ontario Disability Support Program; Developmental Services Ontario; Holland Bloorview; Staff-stories;
- sociology
- softening
- something for the pain; paul austin; down syndrome; emergency room
- something for the pain; stereotypes; people first language
- Special in Uniform; Israeli Defence Forces; disability; special needs; training; army; autism; Down syndrome; Yossi Kahana; Clinical-care; Israel
- special needs
- special needs; Anjet van Dijken
- special needs; holidays; stress; christmas; fragile x
- special needs; single parents; parenting kids with disability; respite
- Special Olympics
- special sparkle
- specialized school
- speech
- speech therapy
- speech therapy; apraxia; oral motor problems; non verbal; hearing loss
- speech; augmentative communication
- speech; augmentative communication; AAC; Pierre Robin sequence; cleft palate; apraxia
- spina bifida
- spinal cord injury; acquired disability; carolyn pioro; special needs; disability; parenting; paralysis
- Spiral Garden
- Spread the word to end the word
- spread the word; r-word
- staff stories
- Staff-stories
- stand clear of the closing doors; autism; trailer;
- starbucks
- stares
- staying calm
- Stephen Dubner
- stephen unwin; a day in the life of joe egg; epilepsy; intellectual disability
- stereotypes; down syndrome; advertising; media
- stereotypes; parenting kids with disability; psychology today; dr. fredric neuman; with a little moxie; meriah nichols; autism; transplant; abuse
- Steven Levitt
- stigma
- stories
- stories; narrative medicine; clinicians; family centred care
- stress
- stress; parenting kids with disability
- stroke
- stronger
- Stumbling on Happiness
- Sturge Weber syndrome
- success
- sue austin; freewheeling; underwater wheelchair; stereotypes; scuba diving; cultural olympiad; olympics; paralympics
- sue austin; underwater wheelchair
- suicide
- Summer
- Susan Senator; autism; advocacy; autistic self-advocacy network; Parent-talk; siblings; limited speech; isolation; exclusion; inclusion
- swearing
- synthetic happiness
- Tali Berman
- tantrums
- teaching
- technology
- ted talk
- teenagers
- tekeal riley
- the black swan; random; unpredictable; blame game; nassim taleb
- the boy in the moon
- The Boy Who Can
- The Brothers and Sisters Book
- The Crash Reel
- The Fall: A Father's Memoir in 424 Steps
- The Harvard Crimson
- the Hebrew University; dr. Ruth Kannai; prenatal testing; termination; Gaucher's disease; narrative medicine
- the memory clinic; tiffany chow; doctor patient relationship; penguin
- the moon
- The National
- the new york times; retarded; international business times; slur
- the pearls project; from stigma to super model; differences
- the revised fundamentals of caregiving; the brief wondrous life of oscar wao; this is how you lose her; the sun
- the shape of the eye; intellectual disability
- the stars
- the strange language of doctors
- The way he looks
- therapy
- therapy; parenting kids with disability
- therapy; values; balance
- Think Like A Freak
- think-throughs
- three days to see
- three days to see; michelle smith; perkins school for the blind; asperger's
- three to be; neurological disorders
- tibetan prayer flags
- Tim Cook
- Tim Horton's
- today's parent; anchel krishna; sign language; speech; communication
- Tomasz Śliwiński
- Toronto
- tracheotomy
- transition
- triathlon; Family
- Triluma Living Collaborative
- Trinity College Dublin
- Trisomy 13
- United Cerebral Palsy
- university
- university health network
- University of Alabama
- university of bristol
- University of California
- university of guelph
- university of toronto
- University of Toronto;
- unschooling
- Upsee
- use your words
- Vancouver 2010 Olympics
- Vanderbilt University
- variety village
- ventilator
- ventilators
- video games; cerebral palsy; therapy
- videoconferencing
- Videos
- violence
- voice device
- wait
- Walgreen's
- walker
- walking
- walking harness
- ward family summer student program; bloorview research institute; healthy body scorecard
- we are fine enough; marc schlossman; autism
- weather
- weight management
- wheelchair
- white-blonde hair
- Williams syndrome
- willowbrook
- winter
- withdrawal of artificial nutrition and hydration in newborns; jonathan hellmann
- withdrawal of care
- withdrawal of fluids in newborns
- women
- women and disability
- wonder baby; perkins school for the blind; vision impairment; multiple disabilities
- woodbine house; sex education; boys guide to growing up
- word use
- world health organization
- worry; emotions; parenting kids with disability
- xavier le pichon; fragility; empathy; plate tectonics;
- xavier pichon
- yelling
- yoga
- york university
- york university; Nazilla Khanlou; parenting kids with disability; service barriers; language barriers; cultural barriers
- young carers
- youth
- Youth Drop In
- Yummy Mummy Club
- zippers
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Februari
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- Every kid deserves a pair of jeans
- Take a look, then look again
- Connect2care puts your child's health record at yo...
- Son's death sparks a search for justice
- Julia knows firsthand that every family is unique
- How baby went from 'alien creature' to 'our son'
- A doll like me
- Get your kid active at Variety Village
- Disability is part of their doll's story
- BLOOM media roundup
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